We would like to express gratitude to all those who have maybe put some of their unfulfilled dreams on hold
in order to be part of our fight.
Lafora is classified as an orphanage disease because it’s so rare. Therefore, no pharmaceutical company is interested in financing researches.
Since scientists already know about three gene mutations responsible for this disease, they are very optimistic since they have a starting point in finding a medicine. They are convinced to be on the right way to discover a therapy for this mean disease, but finances they have on their disposal, are very modest.
For now, parents, friends and relatives of the sick children are the only one financing them.
The Association Hope for Chelzi has so far collected 170.000 dollars.
Most of that money was spent for an EEG apparatus for laboratory animals, which has already resulted in significant moves in the researches of Professor Antonio Delgada Escuetese and his team, in Los Angeles.
An annual engagement of one molecular biologist cost 80.000 dollars.
Professor Berge Minassian is working in one of the largest laboratories dealing with Lafora disease at the SickKids clinic in Toronto, where these gene mutations were first discovered.
The kindness he is using when responding on mails from patients all over the world, we recently found on the site of a sick boy named Mat from Boston. In February this year, the boy’s parents were delighted by information the professor has past to them.
During the last year, for therapy research this laboratory received donations over the amount of 51.800 dollars.
Since LAFORA CHILDREN don’t have time and since they do mind whether a solution is going to be found in one, three or five years, these are small means for great expectations.
HOW TO HELP?
The first thing to do is to spread information on this mean Lafora disease attacking teenagers in a most cruel way.
To share information on our sites with friend, associates, acquaintances, is maybe the most important part.
We know, nowadays it’s hard to live, but if there are a lot of people who know and sympathize, every dollar represents hope and a possibility (children, friends of patients, are even collecting and selling Coca Cola cans).
Helping is very simple and the award lies in faith, fight and hope. These kids are here to teach us. There are rare samples of organized humanitarian dinners and concerts. A mother of a sick girl from America said: „Our children can die long before money arrives, we are trying to rise the conscience about the disease and gain as much money as possible NOW.“
NOT ONLY AS PARENTS, BUT US PEOPLE HO HAVE DIRECTLY COMPREHENDED THE SCOPE OF THIS DISEASE THROUGH OUR OWN TWO BEAUTIFUL CHILDREN, WE WILL MOVE THE HUMAN SIDE IN PEOPLE BECAUSE
THESE CHILDREN DESERVE IT AND OBLIGE US.
As parents we are constantly participating in financial support and research with help of friends already involved in our fight.
Anyone who can and would like to help financially, can donate on:
* UniCredit Bank Banjaluka
Transaction number - 5517202534415427
Father Vitomir Gajić, tel: 00387 65 51 80 28, e-mail: firstname.lastname@example.org
* UniCredit Bank Banjaluka
Transaction number - 3383502505881698
Mother Snježana Gajić, tel: 00387 65 64 93 14, e-mail: email@example.com
* NLB Razvojna banka a.d. 78000 Banja Luka, Milana Tepića 4
foreign currency account: IBAN BA395620998084340461
Swift code: RAZBBA22
Vitomir Gajić, Ul. Bože Nikolića 3, 78000 Banja Luka BiH
Information for direct donations to the research center can be found on links page or contact directly Professor Berge Minassian on
Authors of this site are: mother Snjezana Gajic and father Vitomir Gajic.